The Incident
The “incident” that brought things to a head in October of 2022 involved Mr. J driving aimlessly for two hours when he should have been at a professional appointment – where he was the professional. It was fairly dramatic. When I finally tracked him down and got him to the emergency room, he was confidently reporting Trump was president, and that the date was November of 1969. Clearly, something was wrong. . . A flurry of tests and scans ensued. After several hours, a group of medical professionals gathered to inform us of the results. “Mr. J has had a stroke,” they said. I was so. Damned. Relieved. A stroke has a protocol. A stroke is something one can recover from. A stroke is a known, manageable quantity.
But as I am still processing this information, Dr. Dickhead (not his real name) strode into our small room in the ER. “It’s not a stroke,” he declared. “I’ve already called the radiologist and told him to re-write his report.” He tossed Mr. J’s file on the counter for emphasis. It was like the air went out of the room. I’m not sure if it was the news itself, or Dr. Dickhead’s dismissive manner that had a greater impact on all of us. The attending, the nurses, and other medical professionals, looked at the floor, their cuticles, their phones, anything to avoid looking at Dr. Dickhead.
The Question
After his pronouncement, Dr. Dickhead strode out of the room. There was stunned silence. About a heartbeat went by, and then I said, “I went to graduate school with people like him. Just because he is a bully doesn’t mean he is right.” All professionals in the room worked very hard to avoid eye contact with me and each other. There was nothing to say. Dr. Dickhead was the neurologist on call, and he had made the call. No stroke diagnosis for Mr. J. No treatment. No cure.
The Dismissal
Dr. Dickhead declared Mr. J should be discharged, with additional testing to follow on an outpatient basis. I was dubious about the wisdom of this. And then, the fly in the ointment. Mr. J was supposed to get dressed. The problem was, Mr. J’s definition of “get dressed” involved wandering out of our room in the ER and into the general hub of things. I stopped him three times. “Babe,” I said. “You are supposed to be putting on your pants.” “I am putting on my pants,” he said, as he wandered towards the door of our room in his hospital gown. After the third round of this, I left the room and found the medical professionals (not Dr. Dickhead, who had long since returned to from whence he came). “He can’t get dressed,” I said. “He doesn’t know how to put on his pants.” This got us a hospital bed.
Looking for Zebras
“When you hear hooves, look for horses. But once the horses have been eliminated, look for zebras.” A medical professional told me this as they ran test after test after test. For the next three days, Mr. J was subjected to every test known to man – except a PET scan. Because, apparently, they don’t “do” PET scans at the hospital. Dr. Dickhead assured us we would have a PET scan appointment within a week of discharge. Surprise! Didn’t happen. I had to beg, scream, and threaten legal action to get that PET scan. Which happened in December. We didn’t get to see Dr. Dickhead to review the results for a month. Of course, Mr. J’s test results were posted the Friday before our Monday appointment, so I had all weekend to google his preliminary diagnosis of degenerative brain disease. Not good.
Medical Advice?
“You need to cancel all the credit cards in his name,” Dr. Dickhead said with authority. “Why,” I asked. Dr. Dickhead looked at the floor, “Hookers,” he said. “Hookers?” I asked. There was a long pregnant pause. “Sometimes,” Dr. Dickhead said, “People with this disease order hookers to come to the house.” We sat in silence, letting this information sink in. And if that wasn’t enough, Dr. Dickhead added, “He’ll be in a home by August.” Talk about a gut punch. Of course, I highly doubt that Dr. Dickhead knows that “homes” require private pay. At $10,000 a month, there will be no “home” for Mr. J. (Sidebar: the United States’ approach to health care is appalling.) But I digress.
Dr. Dickhead gave us the website that deals with this illness and sent us on our way. “Come back in six months,” he said.
Not on your life, Dr. Dickhead. Not on your life.
Hi Anne - as a widow from the fast traumatic instant death of my partner 18 years ago - I can’t even imagine the trauma you face daily with knowing the end is coming - slowly. I’m not comparing - both situations have their own challenges and grief - but I expect when you face one, the other seems alien. And as an aside - my mother (still with us) has encountered many Dr Dickheads over the years. I get that these people are specialists and have studied hard and are perhaps brilliant diagnosticians - but they rarely have a decent way of talking to their patients. She has encountered so much arrogance. But also kindness and support too. Here in the UK we may have the NHS but it’s barely held together with surgical tape. Hopefully our new government will improve things 🤞🏻 Wishing you better doctors 💚
Omg… what a jerk! You’ve mentioned him before; thanks for sharing/clarifying this first encounter! And thank you so much for “hearing the hooves… if no horses, look for zebras!” This phrase… in different forms is the tag line for EDS… it took years for my granddaughter to be diagnosed correctly. Ehlers Danlos Syndrome is degenerative and affects connective tissue throughout the body. She was mid-teens when they said seizures. The pain, fatigue, mobility issues didn’t mesh with that… long hospital stays for testing, physical therapy to help her walking ….yada yada… funally a young physicians assistant said you may have EDS. Everything fit. She was 20 by now and angry with everyone. Amazing how many Dr’s hadn’t heard of this. Googling showed the phrase… and she walked into every appt saying I’m a zebra! Turned her life and attitude around and owned it! Advocated for med schools to teach it! She’s 26 with a degree in CJ and an intelligence analyst who uses a cane for support. Sorry to hijack here, Anne… I’m just so angry reading this hospital scene. We all have little 🦓pins and stuffies. I tell my doctors if they’re heading down the “it’s part of aging” speech…zebra hooves perhaps? gets their attention! 😉😅 Bless your heart for being a loving advocate. Much love and peace, dear friend…you do a wonderful job caring for your husband…sharing with us…so well written. I know it’s healing for you; wish I could be right there to give hugs! 🥰❤️