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Searching for the Words's avatar

Hi, Anne. It's remarkable to read about someone else's experience and in some way have a light go on. “Ah!!! Of course, that’s what was happening then.” Reading your essay and then also Pam’s comment did that for me just now. When we were preparing to move across country three-and-a-half years ago I dealt with the house and left the garage to Doug. I didn't understand why he never seemed to be making progress, even though he insisted he was. After we moved, I learned we had literally paid movers to transport bags and boxes of garbage. Once we got his diagnosis, I was able to look back and say, “Ah, this explains that.” But your friend’s explanation reframes it for me. Thank you for sharing it. Courage for the day, whatever today brings. 💕

Pam Johnston's avatar

Oh, Anne. This is all so difficult. The not knowing anything for sure is the worst part.

I don't know how the disease that Mr. J is struggling with works on the brain, but I do know that I spent YEARS being angry at Mike for not getting things done. He had major issues with procrastination long before his diagnosis, so that wasn't new--but it got to the point was there was zero follow-through, on anything. Now I understand that when he said "I'll do it later," he almost always meant "I don't know how to do that anymore, but I don't want to admit that." When he didn't follow through, it meant that he'd totally forgotten what he was supposed to do. When I reminded him that it needed to be done--and, again, he said "I'll do it later"--it felt like we were stuck in a neverending loop.

Understanding this did not make it any less sad to watch or frustrating to deal with. And it didn't help me make peace with having to do everything myself. I wish I knew you in real life so I could offer a glass of wine and a big hug. ❤️

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